Resources

We have compiled information on the questions we are frequently ask, so you can download and read the below fact sheets. If you have a question about Spina Bifida and/or Hydrocephalus, you can contact us by clicking here. Please note that we do not own all of the publications here, as we have sourced some useful and valuable content from other organisations. These organisations own these documents. 

Please scroll through our library to find the information. 

A
Ageing (Living Well with SBH Booklet Edition) - Click Here
Anxiety (Living Well with SBH Booklet Edition) - Click Here
Arnold Chiari Malformation (Living Well with SBH Booklet Edition) - Click Here
Attention and Concentration (Living Well with SBH Booklet Edition) - Click Here

B
Building Personal and Social Networks (Living Well with SBH Booklet Edition) - Click Here

C
Chiari Type II Malformation Information - Click Here 
Children 6 Months to Three Years Information Booklet - Click Here
Communication Difficulty and Strategies (Living Well with SBH Booklet Edition) - Click Here
Continence (Living Well with SBH Booklet Edition) - Click Here

D
Depression (Living Well with SBH Booklet Edition) - Click Here
Diet & Bowel Management Fact Sheet - Click Here
Driving Fact Sheet - Click Here 

E
Early Childhood Information - Click Here
Educating a Child with Spina Bifida and/or Hydrocephalus - Click Here
Employment (Living Well with SBH Booklet Edition) - Click Here
Executive Skills (Living Well with SBH Booklet Edition) - Click Here

F
Folic Acid and Prevention Information - Click Here
Future Planning For Families (Living Well with SBH Booklet Edition) - Click Here

G
 Grief and Loss (Living Well with SBH Booklet Edition) - Click Here

H
Handwriting Education Information - Click Here
Health Professional Information – Spina Bifida Hydrocephalus- Click Here 
Home Modification Information - Click Here
Housing (Living Well with SBH Booklet Edition) - Click Here
Hydrocephalus (Living Well with SBH Booklet Edition) - Click Here
Hydrocephalus Information Booklet - Click Here                             

I
Information Processing (Living Well with SBH Booklet Edition) - Click Here

J
Joint Care (Living Well with SBH Booklet Edition) - Click Here

K
Kidney Health (Living Well with SBH Booklet Edition) - Click Here

L
Latex Allergy - Click Here
Learning and Cognition (Living Well with SBH Booklet Edition) - Click Here
Living Well with SBH Full Booklet - Click Here
Living Well with SBH - 1. Physiological Section - Click Here
Living Well with SBH - 2. Learning and Cognition Section - Click Here
Living Well with SBH - 3. Independent Living Section - Click Here
Living Well with SBH - 4. Community Engagement Section - Click Here
Living Well with SBH - 5. Mental Health Section - Click Here
Living Well with SBH - 6. Health Section - Click Here
Living Well with SBH - 7. Ageing Section - Click Here

M
Medical Implications of Spina Bifida (Living Well with SBH Booklet Edition) - Click Here
Memory (Living Well with SBH Booklet Edition) - Click Here
Mental Health and Spina Bifida (Living Well with SBH Booklet Edition) - Click Here
Money Matters (Living Well with SBH Booklet Edition) - Click Here

N
New Parents Information Brochure - Click Here

O

P 
Parenting & Pregnancy Information for People with Spina Bifida - Click Here
Personal Care (Living Well with SBH Booklet Edition) - Click Here
Precocious Puberty Information - Click Here
Pregnancy (Living Well with SBH Booklet Edition) - Click Here
Pressure Sores Information Sheet - Click Here
Prevention of Skin Problems Fact Sheet - Click Here
Publicity Consent Form - Adults - Click Here Publicity Consent Form - U18 - Click Here

Q

R

S
Sacral Agenesis Information - Click Here
Safe Travel QLD Government (Wheelchairs and Mobility Scooters) - Click Here 
School Readiness Information - Click Here 
Sexual Health (Living Well with SBH Booklet Edition) - Click Here
Shunts and Their Symptoms (Living Well with SBH Booklet Edition) - Click Here
Skin Care (Living Well with SBH Booklet Edition) - Click Here
Sleep Apnoea Fact Sheet - Click Here 
Spina Bifida (Living Well with SBH Booklet Edition) - Click Here
Spina Bifida Hydrocephalus Childhood Information Booklet - Click Here 
Spina Bifida Occulta - Click Here
Spinal Cord Tethering Fact Sheet - Click Here 
Sport and Children with Spina Bifida Information - Click Here 
Suicide (Living Well with SBH Booklet Edition) - Click Here
Swimming and Continence Information - Click Here

T
Toileting Information Book - Click Here
Transport (Living Well with SBH Booklet Edition) - Click Here

U

V
Visual Perception (Living Well with SBH Booklet Edition) - Click Here
Visual Perception Tip Sheet - Click Here 

W
Weight (Living Well with SBH Booklet Edition) - Click Here
Wheelchair Maintenance Information - Click Here

X

Y

Z