Resources

We have compiled information on the questions we are frequently ask, so you can download and read the below fact sheets. If you have a question about Spina Bifida or Hydrocephalus you can contact us by clicking here. Please note that we do not own all of the publications here, as we have sourced some useful and valuable content from other organisations. These organisations own these documents. 

Please scroll through our library to find the information. 

P
Parenting and Pregnancy Fact Sheet - Click Here 
Physical Difficulties and SBH - Click Here 
Precocious Puberty Information - Click Here 
Pregnancy and SBH Booklet - Click Here 
Pregnancy FAQ Brochure - Click Here 
Pregnancy - Thinking About Baby Booklet - Click Here 
Pressure Sores Information Sheet - Click Here
Prevention of Skin Problems Fact Sheet - Click Here

Q

R

S
Sacral Agenesis Information - Click Here
Safe Travel (Wheelchairs and Mobility Scooters) - Click Here 
School Readiness Information - Click Here 
Sex and SBH for Men - Click Here 
Sex and SBH for Women - Click Here 
Sleep Apnoea Fact Sheet - Click Here 
Social Implications of SBH - Click Here
Spinal Cord Tethering Fact Sheet - Click Here 
Sport and Spina Bifida Information - Click Here

T
Tips for Improving Visual Perception - Click Here 
Toileting Information Book - Click Here
Tortocollis Information - Click Here

U

V

W
Wheelchair Maintenance Information - Click Here

X
X Linked Inheritance Fact Sheet - Click Here

Y

Z

A
Adults and SBH Information Guide - Click Here 
Ageing Well Information - Click Here

B
Babies and Spina Bifida Booklet - Click Here 
Babies and Movement Information - Click Here

C
Caring for yourself - Click Here 
Cerebral Ventricular Shunts Information - Click Here
Chiari Type II Malformation Information - Click Here 
Children with Hydrocephalus Colouring In Book - Click Here
Children 6 Months to Three Years Information Booklet - Click Here
Continence and Swimming Information - Click Here

D
Diet & Bowel Management Fact Sheet - Click Here 
Driving Fact Sheet - Click Here  

E
Early Childhood Information - Click Here
Education and Children Information - Click Here

F
Folic Acid and Prevention Information - Click Here 
Folic Acid Information Booklet - Click Here

G
Genetics Information - Click Here

H
Handwriting Education Information - Click Here
Home Modification Information - Click Here 
Hydrocephalus Information Booklet - Click Here

I
iPad Apps for Fine Motor Development - Click Here

J

K

L
Learning Difficulty Strategies - Click Here 
Life after High School Information - Click Here

M
Medical Implications of SBH - Click Here

N
Normal Pressure Hydrocephalus Fact Sheet - Click Here

O